Tarc
Other Networks
Some facilities have dialysis and/or transplant consumer groups that meet on a regular basis. The social worker usually helps to organize these meetings.
The American Association of Kidney Patients (AAKP)
The American Association of Kidney Patients (AAKP) is a national dialysis and transplant consumer organization with regional chapters to provide support and resources to you and your family. These groups meet on a scheduled basis for education, socializing, fund raising and other events. They often have guest speakers who are specialists or renal health care team members to provide basic as well as what is new and changing in the renal field.
National office telephone:
1-800-749-AAKP (2257)
Web site: http://www.aakp.org/
There are two chapters in New Jersey:
The AAKP updates these contact persons under Chapters at: http://www.aakp.org/
Many dialysis treatment facilities hold regularly scheduled consumer support group meetings. Ask the social worker at your facility when the next meeting will be held.
Transplant Recipient International Organization (TRIO)
TRIO is the Transplant Recipient International Organization. It holds regularly scheduled meetings. The New Jersey chapter can be reached at (609) 799-6526 for John Sias or (201) 996-2123 for Sharon Mancini. Their Web site will be ready soon.
The national office of TRIO can be reached at the following:
Each transplant hospital usually sponsors consumer support groups for recipients and family members. At this time not all have completed their Web sites.